My Activity Tracking
59
kms
My target 62 kms
I’m running 2k a day in January for families facing baby loss
I’ve committed to running 2k a day this January for every much-loved baby sadly not here today.
Sands ensure that everyone affected by the loss of a baby gets the support they need and deserve when facing the toughest of times. They campaign for change, provide training for midwives and healthcare professionals, and support research so that fewer babies die and so that less families experience the tragedy of losing their baby. Anything you are able to donate means so much.
Thank you.
My Achievements
Updated Profile Picture
Donated to myself
Shared page
Received First Donation
First run logged
Received 10 donations
Increased Fundraising Target
Completed it!
My Updates
The longest night on NICU
Wednesday 21st Jan Thank you so much again for incoming donations! Today we crossed £3500 in memory of Baby Krrish. I am very grateful for my friends who have supported us in our fundraising mission for SANDS uk…
The Erratic heart…. part 1….
Tuesday 20th Jan
The fractured relationships… Point of no return?
Monday 19th Jan I would like to thank dearest Zainab for sharing her deeply touching story over the weekend. I can share that little Mustafa is nothing short of a little bomb walking around making his presence felt wherever he goes with his infectious laughter and king like presence….
The Boy from My Dream...A NICU story of HOPE... by Dr Zainab M Chaudhry..
Sunday 18th JanContinued ....
Mustafa was so tiny in his incubator. I looked at him and wondered if I’d ever get to hold him again. Over the next 48 hours he was treated for meningitis, seizures and then the third “whammy” bilateral intraventricular haemorrhages. The following day one of the NICU consultants came to speak to me. He said that they had discussed Mustafa at handover and the fact that we were both doctors and my specialty was Neuro Rehabilitation medicine; he said he wanted to speak to me frankly, and ask that if they were to determine that Mustafas quality of life could be poor, then how aggressive we wanted them to be in their management ? I looked at the doctor in between tears, anger and frustration and told him that “right now in this moment, I am not a doctor, I’m a mother whose son is fighting for his life so treat him as aggressively as needed.” That is a conversation I came to know had stayed with the neonatologist since.
Mustafa then developed pulmonary haemorrhages and was started on the dreaded higflow oscillatory ventilator as a last resort. His seizures became increasingly frequent. He then developed hydrocephalus. His cranial ultrasound scan also showed worsening bleeds. It all seemed hopeless. But that was the only thing I held onto hope. NICU is a place full of hope and despair and it is those two emotions we cycled through for the next 14 days. A lumbar puncture done to drain off excess spinal fluid seemed to have worked. He then slowly came off the ventilator and then high flow oxygen onto nasal specs. At 37 weeks gestation Mustafa finally came off oxygen and I could see his tiny, beautiful face without all the tubes.
Amongst all of this I continued to express milk, sterilize, rest and pump again with Scheherazade visiting after school. I stayed for the first 2 weeks in a parent room next to NICU. I felt helpless at not wanting to leave Mustafas side and then a failure for not being present enough for his big sister.
For as long as I can remember I have always been good with names. My father has always taught me that remembering a person’s name makes them feel special and that you’re paying attention. I remembered all the names of the nurses, support workers, lactation specialists, doctors, and volunteers, I remembered how each one had helped me along my NICU journey. One such nurse Trish was the one who recognized that staying on site had been taking its toll on my physical/mental health, she held me for the longest time as I sobbed and said I couldn’t face going home to an empty cot. But it was because of her I had the courage to go home.
Leaving hospital without your baby is the hardest thing any parent can go through and that feeling never goes. Even though our darling Mustafa grew stronger little by little and went from NICU to HDU to SCBU over a space of 12 weeks. That feeling of going home without your baby is heart breaking.
After 12 weeks on the neonatology unit, we finally took our beautiful Mustafa home. Mustafa “The chosen one, the one chosen for me to be his mother, the one chosen to test my faith and my courage, the one chosen to be my source of strength always God willing. The boy from my dream….
I would like to thank my dear friend/sister Subhra for asking me to share my NICU story with Mustafa. I am honoured to have been given such a privilege.
Share
The Boy from My Dream.... A NICU story of hope by Dr Zainab M Chaudhry
Saturday 17th Jan Mustafa means “The chosen one” in Arabic. When I found out I was pregnant in December 2022 after a 4-year fertility struggle, I just knew that it was going to be a boy. A baby boy like the one I had seen in my dream a year before, and was told his name was “Mustafa.” I could not wait for my 20-week ultrasound scan so had a private one at 15 weeks to confirm it. From that day onwards I held onto the dream of finally getting to hold my Mustafa.On the 6th of June 2023 at 28 weeks, 10 min after arriving home from work. My waters broke without warning, and I went into preterm labour. Everything that happened after that is a blur. I remember crying, being rushed to hospital by Shan who happened to be home that day, our daughter Scheherazade crying in the back seat asking, “why is mommy crying so much”. I remember calling Triage and telling them my waters had broken, and I was having contractions. I remember vividly telling Shan “How will he survive? and that I thought I had lost him.”
Mustafa was born within 5 minutes after reaching hospital. They guesstimated his time of birth as 5:45 pm as they could not be sure, it happened so quickly. There was no time for pain relief, magnesium sulphate or steroids, all the things to decrease poor outcomes from a preterm birth.
After he was born, I got to hold Mustafa for one minute before he was transferred to NICU and intubated. As I looked upon his tiny swollen bluish face, I knew in my heart this was the little boy from my dream.
Only 3 hours later confused, exhausted and alone on the post-natal ward I got a visit from the neonatology consultant asking me to come down to NICU as Mustafa had gram negative sepsis and was on maximum ventilatory support, they weren’t sure whether he would survive the next 24 to 48 hours.
As I entered NICU for the first time, I looked around at this secret place that only few know about, those that work there or the parents of babies admitted there. It was the place that was going to break me, test my resilience and my relationships and that it did…
When the choice is taken away…
Friday 16th Jan Yesterday, we talked about how we all always have a choice.. Then come times when the choice is taken away from our hands…Life is incomplete till we all have one such experience, it often hits us when we are not ready for it xx
The choice..
Thursday 15th Jan Don’t we all have a choice? Choice of friends, choice of charities; choice of money we donate? Days when I thought to myself - does anyone even care? Why am I doing it?
A Place with No Goodbyes…
Wednesday 14th Jan On 14/1/2016 - I write about little girl in the incubator across .. her lungs had failed for for the fourth time with infection.. Baby L needed steroids and antibiotics and I was praying desperately for her to be well. Then next day…. her name disappeared from the board.. 9 month journey came to an end… There are no good byes on NICU…
Little joys of life
Tuesday 13th Jan Someone once told me “Happiness is a learnt behaviour” .. In the deep sorrow and pain of the situation with Baby Krrish, we had some very lighter, happier, elated moments. Everytime Baby Krrish was stable and not causing chaos on NICU, it felt like we were on top of the world. I made some mum friends, we had our little laughs ..
12 days into loving you..
Monday 12th Jan I am very grateful for steady flow of donations, really touched by kind words and really blown away by everyone’s generosity..
Between hope and heartbreak by Preetham Kodumuri, 11/1/2026
Sunday 11th Jan
The world changed for me 10 years ago ..
Saturday 10th Jan Today’s story - by my Baby Krrish’s daddy….
When silence held us together - 9/1/26
Friday 9th Jan My walk today was wonderful, in day light with Preetham and Ishaan.. Today my fundraising has stalled a bit, so I will have to get innovative to reach more people.. But today Preetham and I will donate to our own cause. Can my friends who haven’t donated - dig those pockets a bit deeper? It’s time to give for little humans who come into this world and didn’t make it, all those bereaved families. Thank you to the school mums who encouraged me today… ❤️… It means a lot in days you stumble…
“ The cuppa” 8/1/26
Thursday 8th Jan Day to day we all think, am I important enough in this society? Today’s post is heavy and light… Often health care assistants say or think “we are only a HCA” … Can we work to break this hierarchy in our society?“I knew things are horribly wrong, but something inside me says you are a fighter” I had written and Baby Krrish was - he was a true warrior and he proved it to us all in coming days…
The failed mother.. 7/1/26
Wednesday 7th Jan Today felt a little harder with my 2K walk, busy clinic, admin, 1st day back at work, evening routine with food, home, classes. My promise to Baby Krrish and raising money in his memory suddenly gave me energy I didn’t know I had. Pleasant walk / Little jog’s with Preetham…
A very special visitor - 6/1/26
Tuesday 6th Jan We have together hit 41 donors so far (excluding me), raised together 1457 + gift aid… I’ve had donations come from different continents…I cannot thank each and every one of you enough.
The Snowy day… Are we being unfaithful parents?
Monday 5th Jan Today reminded me very much of a snowy day.. every year on 1st /24th of January, We would want to go and visit Krrish, He is buried in a beautiful memorial ground in Nottinghamshire called Tithe green burial ground.
NICU : A world of its own…
Sunday 4th Jan I am truly humbled by donations… Thinking now - should I increase my target or not?
The first conversation….
Saturday 3rd Jan Sometime between day 2 and day3, Baby Krrish took turn for the worst, it felt like suddenly carpet was pulled from under our feet, I remember being woken up by a nurse at 6 in morning and being summoned to the NICU. Preetham had already been asked to come… Clinicians had noticed blood in Krrish ‘s tubes - his numbers took turn for the worse, Baby K had suffered with a big bleed on his lungs, Bleed on his brain and developed life threatening infection: That was the first time we were summoned by doctors, in presence of our support worker - told that things are looking very critical - he may not make it, next 24-48 hours are crucial. In coming days, we were told it was pseudomonas infection… Likely source of this was me! As I am a healthcare worker I probably carried it on my body. That moment my world came crashing, I was angry, hurt and became paranoid about cleaning - any chairs, taps, incubator anything I touched - was cleaned with wipes.. I stopped touching Baby Krrish … This paranoia went on for 7-8 days …Till they dropped another bomb on us… turns out it was same strain isolated from another baby, I wasn’t to blame - it was because doctors sometimes didn’t use gloves when taking bloods “ they couldn’t feel the veins” … heartbroken, fuming just can’t describe my feelings. For days I took the blame, to find out it was not me.. I guess that’s what mothers do!
The calm before the storm.. 2/1/26
Friday 2nd Jan “The calm before the storm” doctors said, whilst Preetham and I are both doctors we knew nothing about the world of neonates… The next couple of days (1st and 2nd of January 2016) felt hopeful, felt like “things could just be ok”.. Our support worker and Nurse on NICU told us “It will be an emotional rollercoaster” a phrase we had heard a few times, but just didn’t know what it means. Baby Krrish was stable, cute as ever, but attached to so many tubes… This little person trying hard to fight back and me fighting back my tears that just would keep coming… It was hurting that I couldn’t hold him, he was still cute in the incubator… I was holding his hands, touching his skin… Also obsessively preparing to breast feed him at the earliest opportunity I could!! I started expressing milk and storing syringes and bottles in freezer in the hope … One day he will have my milk!! I will share with you all later how much milk I had eventually expressed in the month!
1/1/16: The gift of life
Thursday 1st JanThank you to my Sponsors
£1,000
Sr And Pk
£106
Kelly Williams
£79.50
Geraldine
Great cause . Pleased to support . Full of admiration for you all. Sending love from Sebastian and me xxx
£75
Kajani Perinpanayagam
Great work Subhra. Good luck.
£53.32
Ib Malek
What a thoughtful and noble cause! All the best Subhra. Sana & ib
£53.32
Barkha And Narendra
Lots of love and strength to you Subhra and Preetham
£53.32
Naveen Kandavalli
£53.32
Anonymous
£53.32
Jeevan Chandrasenan
Wonderful initiative Subhra. All the best.
£53.32
Delicia Benjamin
Thinking of you and wishing you peace.
£53.32
Poonam Shenoy
Our best wishes to you and your family always Subhra.
£53.32
Saumya Gupta
You brave girl 👏 lots of love and strength to you ❤️
£53.32
Charan Gudla
Thank you for sharing…
£53.32
Harsha Reddy
Good luck on reaching your personal goal. I have every faith you’ll do it.
£53.32
Anonymous
Great cause… best wishes
£53.32
Yogesh Joshi
So incredibly proud of you for doing this. Turning something so deeply painful into a source of hope and support for others takes immense strength and compassion. Thank you for your courage, kindness, and big heart, you are truly inspiring. 💙… Yogesh and Shweta.
£53.32
Swati Singh
I hope this effort reaches all the goals that you desire .
£53.32
Amy Ramoutar
Oh Subhra, I’m so sorry for your loss. So very proud of you taking on this challenge for this amazing charity. Absolutely inspirational. Wishing you all the best for it xx
£52.12
Pradeep Kodumuri
Wishing you all the very best on the wonderful initiative Subhra!! Our best wishes!!!
£50
Arvin Rodrigues
Dear Subhra, Those we have held in our arms even for a little while, we hold in our hearts forever. I hope this arctic freeze eases and makes your valiant endeavour easier. Love, Arvin
£50
Kamal Sahni
Well done
£50
Amrith Shetty
Best wishes to you always
£33.28
Avni Johri
More Power to you Subhra for all humanitarian efforts !
£32.23
Ashu Loona
All the best
£32.23
Sarah C
Wishing you all the shooting stars in the sky - sending love and good luck vibes
£30
Ishika Kodumuri
£30
Z. Mahmud
Sending you lots of love . You are amazing xx
£27.05
Giorgos Jones
Amazing effort Subhra. Love to you in this personal endeavour.
£27.05
Anonymous
£27.05
Zoe Blakemore
Way to go Subhra - you’re a star xx
£27.05
Nicky Dale
An amazing charity, well done Subhra xx
£27.05
Kelly Craigen
£27.05
Fiona Nelhans
£27.05
Ruth Edgar
£27.05
Lm
Big love to you and Preetham ❤️
£27.05
Mark Gaden
Good luck with your challenge. I hope you raise a lot of money to support this excellent charity.
£27.05
Sowmya Palani
Great cause! Heart-wrenching and incredibly brave. Sending you so much love and strength - your baby’s legacy is truly meaningful 🤍
£26.45
Rani Bola
£25
Deepa Jadhav
So much in awe of your brave decision to share it all. Sending you love and hugs to heal and grow with your pain.
£25
Anonymous
£25
Anonymous
Sending love & hugs
£25
Subhra Raghuvanshi
£25
Tina Gilbert
£25
Joh-an Hulme
Wishing you all the best Subhra, you got this!
£25
Sandra Gibson
£25
Kavitha Raja
£22.76
Giorgos Jones
Keep going, you're over halfway there!
£21.84
Julie Edwards
Subhra. I have so much admiration for what you are doing. I had a beautiful still born baby boy Louis at 37 weeks in 2002 and i know what a fantastic charity Sands is.
£21.84
Emma Parry
Thank you for sharing. Good luck x
£21.84
Linda Lancaster
It doesn't matter if you walk or run. You can do it Subhra x
£21.84
Tina Gilbert
Go Subhra! I remember this awful time so well! Such a worthy cause m. Remembering Kris ❤️❤️x
£21.84
Erin
Well done my friend! Such a powerful way to remember baby Krish ❤️
£21.84
Claire Parry
Incredibly strong to share the loss of your little boy. Good luck for your challenge x
£21.84
Rosie Diane
£21.84
Amanda Rees
Good cause and good luck Subhra ❤️
£21.84
Mamta Prasad
£21.84
Claire Williams
Thank you for sharing such deep and personal anguish in aid of supporting this great charity. You are so brave and strong 💪🏼 Good luck for your January challenge
£20
Sudhi
Great efforts Subhra! Keep going 👍 Sending love xx
£16.56
Min Loh
What an amazing initiative! All the best!
£16.56
Beth H
£11.33
Caroline Kirk
£11.33
Rhian Hughes
Your story was shared with myself from a colleague. I’m so very sorry for the loss of your baby boy. My daughter was born at 26 weeks and I know that rolla-coaster all so well .. I’m a very lucky mummy, my daughter is a healthy 16 year old. What you’re doing is amazing. Only wish I could donate more.
£11.33
Tamara Williams
£11.33
Ruth Leighton
Dear both what you are doing is truly amazing. Sending love ❤️
£11.33
Namitha Palathur
Not a generous amount but I have done whatever I could for the cause. With a prayer that what happened to me was unexpected but it should not happen to anyone. Hugs and love to you Subhra
£11.33
Anna
Hi Subhra, you are a beautiful person and mother. Your stories are so inspiring. Sending love and strength to you and your family. Cara sends live to Ishika. Anna
£11.33
Diana Paius
£11.33
Marica Oneill
With love to you c
£11.33
Della Williams
So sorry to read your story, very happy to support this cause. Good luck with it xx
£11.33
Sally Priest
Well done Subhra for doing this challenge for such an amazing charity xx
£11.33
Madeline Whitlock
£11.33
Lara
Sending much love to you all 💞
£11.33
Ros Wilson
My thoughts are with you and I hope you can enjoy raising money for this great charity.
£11.33
Julie Stonier
Such a brave thing to share Subhra. Your children, family and friends are so lucky to have you ❤️ Goid luck with your well deserved fund raising xxx
£11.33
Dhanushka
£11.09
Samantha Brummell
Thank you both for sharing your story and doing something so amazing to help raise money for such an amazing charity.
£11.09
Ange & Cerys Xx
Big Hugs Subhra, You Got This !!
£10
Anonymous
£10
Emma
You got this!
£10
Sarah, Mat, Jasper And Iris Xx
Sending all our love to you and your family Subhra. I’m so sorry for your loss, and so impressed that you’re still going despite the snow (inside definitely still counts!) as I know how hard it is to feel motivated at this time of year xx
£10
Sandra Gibson
What a beautiful way to honour your precious baby's memory x
£6.11
































